Emily’s House Client Survey 2025 Highlights
The Emily’s House Anonymous Client Survey 2025 yielded informative, practical and encouraging feedback from Emily’s House families about the care their child received at our children’s hospice, and how well their family felt supported.
Here are a few representative excerpts from parent caregivers of our children and youth with complex disability and underlying life-limiting illness.
Excerpts from anonymous client surveys completed by caregiver parents:
- “Thank you so much for helping medical parents like us build trust in other caregivers of our children, to help encourage us to get respite support. It feels impossible to trust others with a medically complex child, and your team is extraordinary in building this trust in a compassionate, safe and thoughtful way. Thank you!!!”
- “Emily’s House has improved all of our lives! We never thought we could leave [ our daughter ] anywhere, we are not only able to leave her but know she will actually have an amazing time while we are away. The level of care and caring is out of this world.”
- “We love Emily’s House. We feel like our child belongs and is welcomed. We loved it when photos and videos of what our child was doing were being sent to us…. We love to hear what they’re doing during the day and what made them laugh or smile.”
Other survey highlights:
- When asked in an anonymous survey, “How often did Staff treat your child as a unique person”… 87% said always!!! 13% said usually.
- When asked in an anonymous survey, “How often did you experience acts of kindness from Staff while you were at Emily’s House?” … 93.3% said always or usually.
- When asked in an anonymous survey, “How often did Staff provide enough time when talking with you and your family so you did not feel rushed?” … 80% always and 20% usually.
Emily’s House Day Programming: Medical Respite and Recreation:
- In our anonymous client survey, when asked, “How helpful is day programming for your family, of the families who participated,” … “100% said it was extremely helpful or very helpful.”
- One mom wrote: “We have been so grateful for respite and the other new programming, like for siblings. Our child loves being at Emily’s House.”
Music Therapy Client Survey Feedback:
- 61% of community clients on the anonymous survey responded that: “Music Therapy services supported my/my family’s emotional and/or spiritual needs.”
- Another 78.26% reported that “Music Therapy services supported my/my family practical needs.”
- One parent wrote in: “We benefited greatly from knowing not only would our baby be well looked after by qualified and trustworthy medical staff, but that they would also be exposed to Music Therapy, Snoezelen Therapy, and friendly and fun people!”
Engaged parents weighed in with very constructive and positive feedback to help inform programming for the year ahead. Programming requests included:
- More Day Trips
- If More availability is there, it will be great.
- Social events – movie nights
- Therapeutic activities – animal assisted therapy
- March Break Camp, programming during camps in the summer that focus on a skill, like maybe a physiotherapy camp type of thing
To participating families, the frontline care teams, donors, volunteers, and all the behind-the-scenes champions and partners, thank you for making it possible for Emily’s House to continue to develop and design care plans and children’s programing that engages and supports whole families, and adds immeasurable quality to life for everyone impacted.
